Connie Price was given a devastating diagnosis of pulmonary hypertension as a toddler – but four years later, the future is starting to look brighter. Here, her mother Jane remembers the route to diagnosis and reflects on family life in the shadow of this rare disease.
Pam Fenton was diagnosed with idiopathic pulmonary arterial hypertension in 2018, and her husband Graham gave up his job to help care for her.
They are sharing their story to help raise awareness of the condition and encourage more understanding and earlier diagnosis.
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