“I was diagnosed with the connective tissue disorder systemic sclerosis in 1999, and balanced bringing up two young children with hospital visits and regular inpatient care. The condition, an autoimmune disease that causes abnormal growth of connective tissue, caused painful ulcers on my fingers and toes and led to partial amputations of my fingertips. These…
Joanne Kelly, who now lives in Lancashire, spent four years as a pulmonary hypertension patient in Australia before moving back to the UK. Here, she discusses her experiences at both ends of the globe.
As theatre manager for a hospital cardiac unit, David Stott from Preston was used to being around patients, but unprepared to become one himself. David explains how his PH diagnosis triggered depression – and why he’s coming out of it stronger.
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